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Advances in genetic technology in general and medical genetics in particular will enable us to intervene in the process of human biological development which extends from zygotes and embryos to people. This will allow us to control to a great extent the identities and the length and quality of the lives of people who already exist, as well as those we bring into existence in the near and distant future. Genes and Future People explores two general philosophical questions, one metaphysical, the other moral: (1) How do genes, and different forms of genetic intervention (gene therapy, genetic enhancement, presymptomatic genetic testing of adults, genetic testing of preimplantation embryos), affect the identities of the people who already exist and those we bring into existence? and (2) How do these interventions benefit or harm the people we cause to exist in the near future and those who will exist in the distant future by satisfying or defeating their interest in having reasonably long and disease-free lives? Genes and Future People begins by explaining the connection between genes and disease, placing genetic within a framework of evolutionary biology. It then discusses such topics as how genes and genetic intervention influence personal identity, what genetic testing of individuals and the knowledge resulting from it entails about responsibility to others who may be at risk, as well as how gene therapy and genetic enhancement can affect the identities of people and benefit or harm them. Furthermore, it discusses various moral aspects of cloning human beings and body parts. Finally, it explores the metaphysical and moral implications of genetic manipulation of the mechanisms of aging to extend the human life span.The aim Genes and Future People is to move philosophers, bioethicists, and readers in general to reflect on the extent to which genes determine whether we are healthy or diseased, our identities as persons, the quality of our lives, and our moral obligations to future generations of people. The book is a sustained philosophical reflection on some of the metaphysical and moral issues presented by genetics and different forms of genetic intervention.
Human genetics --- Moral and ethical aspects. --- Philosophy. --- genetica (genen) --- genetische test (genetische zelftest) --- kloneren (klonen) --- gentherapie --- génétique (gènes) --- test génétique (autotest génétique) --- clonage --- thérapie génique --- Genetics --- Heredity, Human --- Human biology --- Physical anthropology --- Moral and ethical aspects --- Philosophy --- Moral and religious aspects
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This book presents twenty-nine case studies that identify the most important ethical issues likely to emerge from new technologies of genetic testing and develops a series of guidelines based on the case studies. The authors believe that guideline formation is dependent on case analysis and that any statement of general guidelines must follow from concrete, practical discussion of specific situations. For these reasons, the guidelines presented are rooted in the case discussions and follow from the resolution of the cases. By providing the clinical origins and rationale behind each of its recommendations, the book aims to provide guidance for thinking through the ethical issues as well as a starting point for development of additional guidelines.
#GBIB:CBMER --- Huntington's Disease --- Genetic Counseling. --- genetische counseling --- conseil génétique --- Ethics, Medical. --- Genetic Screening --- Genetic disorders --- Hereditary Diseases --- Diagnosis --- Case studies. --- Moral and ethical aspects. --- Genetics. --- Congenital diseases --- Disorders, Genetic --- Disorders, Inherited --- Genetic diseases --- Hereditary diseases --- Inherited diseases --- Diagnosis&delete& --- Case studies --- Moral and ethical aspects --- genetische test (genetische zelftest) --- recht op niet weten (recht op weten) --- test génétique (autotest génétique) --- droit de ne pas savoir (droit de savoir) --- Diseases --- Medical genetics
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The rapidly changing field of genetics affects society through advances in health-care and through implications of genetic research. This study addresses the impacts of new genetic discoveries and technologies on different segments of today's society. The book begins with a chapter on genetic complexity, and subsequent chapters discuss moral and ethical questions arising from today's genetics from the perspectives of health care professionals, the media, the general public, special interest groups and commercial interests.
Human genetics --- Medical ethics. --- Biology --- Bioethics --- Biomedical ethics --- Clinical ethics --- Ethics, Medical --- Health care ethics --- Medical care --- Medicine --- Professional ethics --- Nursing ethics --- Social medicine --- Social aspects. --- Moral and ethical aspects --- gedrag --- gender --- genetica (genen) --- genetische discriminatie --- genetische test (genetische zelftest) --- homoseksualiteit --- prenatale diagnostiek (prenatale test) --- ras --- Social aspects --- comportement --- genre --- génétique (gènes) --- discrimination génétique --- test génétique (autotest génétique) --- homosexualité --- diagnostic prénatal (test prénatal, DPN) --- race --- Bioethics. --- Genetic Techniques. --- Genetics, Medical.
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"Genetic Turning Points is an outstanding study of the problem of genetic engineering and related ethical issues. It addresses difficult and sometimes technical matters in a style that is both clear and scholarly, and it provides valuable insights into issues that are being thrust to the fore by scientific progress. Genes store the directions for all life on earth. If you want to know where we might be going, read this book. It is a road map that can save you from many ill-fated journeys." - William R. Shea
Human genetics --- Medical genetics --- Genetic engineering --- Religious aspects --- Christianity --- genetica (genen) --- genetisch onderzoek --- genetische test (genetische zelftest) --- genetische engineering (manipulatie) --- Christelijke ethiek --- génétique (gènes) --- recherche génétique --- test génétique (autotest génétique) --- génie génétique (ingénierie génétique) --- éthique chrétienne --- Designed genetic change --- Engineering, Genetic --- Gene splicing --- Genetic intervention --- Genetic surgery --- Clinical genetics --- Diseases --- Heredity of disease --- Religious aspects&delete& --- Genetic aspects --- Genetic recombination --- Biotechnology --- Transgenic organisms --- Medical sciences --- Pathology --- Genetic disorders --- Genetics --- Heredity, Human --- Human biology --- Physical anthropology --- Human genetics - Religious aspects - Christianity --- Medical genetics - Religious aspects - Christianity --- Genetic engineering - Religious aspects - Christianity
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La génétique est sous les feux de la rampe depuis plusieurs années. Avec la génétique humaine et le développement des tests, c'est la médecine prédictive qui acquiert ses lettres de noblesse. Une impulsion nouvelle est donnée au projet de remplacer progressivement une médecine curative ou palliative par une médecine active de prévention des maladies. Mais si le savoir génétique apporté par le résultat d'un test nous donne une connaissance anticipée de notre avenir organique probable - ou de celui de l'enfant que nous attendons - force est de reconnaître qu'actuellement notre capacité d'intervention pour en infléchir le cours reste très limitée. Que faire alors de tout ce savoir prédictif dans le domaine de la santé et de la procréation ? Dans une première partie, cet ouvrage aborde des questions qui émergent dans la presse, les publications et les colloques à propos des tests diagnostiques et prédictifs de santé : complexité du conseil génétique, évaluation des risques et risque zéro, eugénisme social, relation médecin-malade, régulations personnelle et sociale de l'usage des tests, etc. Dans une seconde partie, il approfondit d'un point de vue éthique et philosophique certaines questions qui paraissent centrales pour aborder le problème d'une meilleure «humanisation» des tests : statut de la connaissance objective face à l'engagement et à la responsabilité pour l'autre dans la situation du diagnostic anténatal et statut du savoir prédictif face à l'interprétation en terme de «destin» ou de «liberté» pour l'ensemble des tests. La liberté de l'homme - qu'il soit adulte ou en gestation - ne serait-elle pas d'attester qu'il peut être en excès sur tout savoir porté sur lui et qu'en aucun cas un gène, quel qu'il soit, ne peut être interprété comme l'écriture de son destin ?
Genetisch onderzoek --- Recherche génétique --- Genetic screening --- Genetique humaine --- Ethique medicale --- Depistage genetique --- Genetique medicale --- Diagnostics prenatals --- 17.022 --- Preventieve geneeskunde --- preventieve geneeskunde --- Zedelijke beoordeling. Axiologie. Ethisch oordelen --- Wettelijke en contractuele aansprakelijkheid ; Algemeen ; Meerdere landen --- Preventie ; Ziekte ; Ongevallen --- médecine préventive --- 17.022 Zedelijke beoordeling. Axiologie. Ethisch oordelen --- 61 --- 342.721 --- #GBIB:CBMER --- Genetica --- Medische ethiek --- 13.01.ZZD --- 12.04.a --- genetische test (genetische zelftest) --- 342.721 Persoonlijke vrijheid. Privacy. Wetgeving i.v.m. transplantatie van organen --- Persoonlijke vrijheid. Privacy. Wetgeving i.v.m. transplantatie van organen --- Geneeskunde. Hygiëne. Farmacie --- Génétique --- Médecine préventive --- Ethique médicale --- test génétique (autotest génétique) --- Génétique humaine --- Dépistage génétique --- Dépistage génétique --- Éthique médicale
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lichaamsmateriaal (lichaam, menselijk lichaamsmateriaal) --- commercialisering van het menselijk lichaam (orgaanhandel) --- bloed (bloedproducten, bloedderivaten) --- navelstrengbloedbank (navelstrengbloed) --- genetische test (genetische zelftest) --- recht (wetgeving, rechtspraak, rechtsbeginselen, juridische aspecten, aansprakelijkheid) --- rechtsvergelijking --- ethiek (ethische aspecten) --- Frankrijk --- matériel corporel humain, (corps humain) --- commercialisation du corps humain (commerce d'organes) --- sang (produits sanguins) --- banque de sang du cordon ombilical (sang du cordon ombilical) --- test génétique (autotest génétique) --- droit (aspects juridiques, législation, jurisprudence, principes de droit, responsabilité) --- droit comparé --- ethique (aspects ethiques) --- France --- Santé publique --- Corps humain --- Parties du corps --- Sang --- Embryon humain --- Gestation pour autrui --- Mères de substitution --- Dépistage génétique --- Droit comparé --- Droit
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The Convention on Human Rights and Biomedicine, also referred to as the "Oviedo Convention", celebrated the 10th anniversary of its entry into force in 2009. This legally binding instrument aims to protect the integrity, dignity and identity of all human beings and guarantees everyone, without discrimination, the respect for their rights and fundamental freedoms with regard to the application of biology and medicine. It shares with the European Convention on Human Rights the same underlying approach and many ethical principles, and provides a general framework for the protection of fundamental rights and freedoms in the field of biomedicine. The Oviedo Convention also addresses new challenges in biomedicine that are brought about by technological and scientific developments, making it a reference text for patient rights at the European level. The principles laid down in the Oviedo Convention were further developed and complemented in additional protocols in specific fields: prohibition of cloning of human beings, transplantation of organs and tissues of human origin, and biomedical research and genetic testing for health purposes. The texts presented in this publication form a unique legally binding set of instruments at the international level.
kloneren (klonen, therapeutisch kloneren, reproductief kloneren) --- transplantatie (orgaantransplantatie, weefseltransplantatie, allocatie van organen, donorschaarste) --- biomedisch, medisch-wetenschappelijk onderzoek --- genetische test (genetische zelftest) --- Verdrag tot bescherming van de rechten van de mens en de waardigheid van het menselijk wezen met betrekking tot de toepassing van de biologie en de geneeskunde, Oviedo, 4 april 1997 (Verdrag inzake de mensenrechten en de biogeneeskunde) --- clonage (clonage thérapeutique, clonage reproductif) --- transplantation (transplantation d'organes, transplantation de tissus humains, greffe d'organes, pénurie d'organes, allocation d'organes) --- recherche biomédicale --- test génétique (autotest génétique) --- Convention pour la protection des droits de l'homme et la dignité de l'être humain à l'égard des applications de la biologie et de la médecine, Oviedo, 4 avril 1997 (Convention sur les droits de l'homme et la biomédecine)
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Natural law --- Human rights --- Human genetics --- Colloques --- Colloquia --- Droits de l'homme --- Erfelijkheidsleer --- Ethique philosophique --- Geneeskunde --- Genetica [Menselijke ] --- Genetics [Human ] --- Génétique humaine --- Hérédité --- Menselijke genetica --- Mensenrechten --- Médecine --- Wijsgerige ethiek --- DNA fingerprinting --- Evidence (Law) --- Evidence, Criminal --- Forensic genetics --- Paternity testing --- Empreintes génétiques --- Preuve (Droit) --- Preuve (Droit pénal) --- Génétique légale --- Recherche de paternité --- Ethics, Medical --- Legislation as Topic --- Human Rights --- genetische test (genetische zelftest) --- genetische vingerafdruk (DNA-identificatie) --- 351.84*7 --- 17.023.33 --- 241.63*2 --- test génétique (autotest génétique) --- empreinte génétique --- Medisch recht. Gezondheidsrecht. Wetgeving i.v.m. ziekenhuizen --- Biologische doeleinden. Bio-ethiek; bioethiek. Übermensch. Medische deontologie --- Theologische ethiek: medische ethiek: dokter; verpleegster; ziekenhuis --- 241.63*2 Theologische ethiek: medische ethiek: dokter; verpleegster; ziekenhuis --- 17.023.33 Biologische doeleinden. Bio-ethiek; bioethiek. Übermensch. Medische deontologie --- 351.84*7 Medisch recht. Gezondheidsrecht. Wetgeving i.v.m. ziekenhuizen --- Empreintes génétiques --- Preuve (Droit pénal) --- Génétique légale --- Recherche de paternité --- Genetics --- Juridical aspects --- Methodology --- Data processing --- Moral and ethical aspects --- Belgium --- Canada
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The philosophy of the right to know and the right not to know, Ruth Chadwick; individual rights and genetics - the historical perspective - a comment on Ruth Chadwick's paper, Urban Wiesing; sociological perspectives on the right to know and the right not to know, Mairi Levitt; the meaning of "rights" in the right to know debate, Ingmar Porn; rights to know and not to know - is there a need for a genetic privacy law?, Tony McGleenan; autonomy and a right not to know, Jorgen Husted; do "all men desire to know"? - a right of society to choose not to know about the genetics of personality traits, Darren Shickle; mass meida and public discussion in bioethics, Ruth Chadwick and Mairi Levitt; living with the future - genetic information and human existence, Henk ten Have.
Human chromosome abnormalities --- Genetic disorders --- Disease susceptibility --- Medical ethics --- Dépistage génétique --- Maladies héréditaires --- Prédisposition morbide --- Ethique médicale --- Diagnosis --- Moral and ethical aspects --- Genetic aspects --- Aspect moral --- Diagnostic --- Aspect génétique --- -#GBIB:CBMER --- genetica (genen) --- erfelijkheid (erfelijke aanleg) --- genetische test (genetische zelftest) --- predictieve genetische test (voorspellende genetische test) --- genetische databank (genetische informatie) --- recht op niet weten (recht op weten) --- persoonlijke levenssfeer (privacy, bescherming van de persoonlijke levenssfeer, anonimiteit) --- autonomie van de patiënt --- ethiek (ethische aspecten) --- Human chromosomes --- Chromosome abnormalities --- -Moral and ethical aspects --- génétique (gènes) --- hérédité (disposition héréditaire, prédisposition héréditaire) --- test génétique (autotest génétique) --- test génétique prédictif --- banque d'information génétique (base de données génétiques, information génétique) --- droit de ne pas savoir (droit de savoir) --- vie privée (protection de la vie privée, anonymat) --- autonomie du patient --- ethique (aspects ethiques) --- Abnormalities --- Dépistage génétique --- Maladies héréditaires --- Prédisposition morbide --- Ethique médicale --- Aspect génétique --- Medical law --- #GBIB:CBMER --- Diagnosis&delete& --- Professional ethics. Deontology --- Legal theory and methods. Philosophy of law --- Moral and ethical aspects.
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Medical law --- Human genetics --- Professional ethics. Deontology --- screening --- medische genetica --- Erfelijkheidsleer --- Ethique philosophique --- Hérédité --- Wijsgerige ethiek --- Genetic Testing. --- Neonatal Screening. --- Bioethics. --- Ethics, Medical. --- Genetic Predisposition to Disease. --- 241.63*5 --- 17.023.33 --- Genetic screening --- -Genetic screening --- -#GBIB:CBMER --- #RBIB:gift.1999.2 --- #SBIB:316.334.3M51 --- #SBIB:316.334.3M20 --- #SBIB:316.334.3M50 --- #gsdb5 --- #GGSB: Moraaltheologie (algemeen) --- #GGSB: Bio-ethiek --- #GGSB: Medische ethiek --- genetica --- ethiek --- 351.84*7 --- 575 --- 614 --- genetische test (genetische zelftest) --- genetische screening --- Genetische manipulatie --- Medische ethiek --- Eugenetica --- Genetica --- Bio-ethiek --- ethiek (moraal) --- tests --- genetisch advies --- prenatale diagnose --- erfelijkheidsleer --- genetische manipulatie --- 603.1 --- Human chromosome abnormalities --- Medical screening --- Medical Ethics --- Medicine --- Professionalism --- Bioethics --- Biomedical Ethics --- Health Care Ethics --- Ethics, Biomedical --- Ethics, Health Care --- Ethics, Medical --- Ethicists --- Infant, Newborn, Screening --- Newborn Infant Screening --- Neonatal Screenings --- Newborn Infant Screenings --- Screening, Neonatal --- Screening, Newborn Infant --- Screenings, Neonatal --- Screenings, Newborn Infant --- Prenatal Diagnosis --- Genetic Screening --- Predictive Genetic Testing --- Predictive Testing, Genetic --- Testing, Genetic Predisposition --- Genetic Predisposition Testing --- Genetic Predictive Testing --- Genetic Screenings --- Genetic Testing, Predictive --- Predisposition Testing, Genetic --- Screening, Genetic --- Screenings, Genetic --- Testing, Genetic --- Testing, Genetic Predictive --- Testing, Predictive Genetic --- Genetic Predisposition to Disease --- Preimplantation Diagnosis --- Cytogenetic Analysis --- Molecular Diagnostic Techniques --- Databases, Genetic --- Databases, Nucleic Acid --- Genetic Privacy --- Predisposition, Genetic --- Susceptibility, Genetic --- Genetic Predisposition --- Genetic Susceptibility --- Genetic Predispositions --- Genetic Susceptibilities --- Predispositions, Genetic --- Susceptibilities, Genetic --- Disease Susceptibility --- Genetic Testing --- Anticipation, Genetic --- Genetic Association Studies --- Gene-Environment Interaction --- Theologische ethiek: bio-ethiek (bioethiek); genetische experimenten; transplantatie; eugenetica --- Biologische doeleinden. Bio-ethiek; bioethiek. Übermensch. Medische deontologie --- Moral and ethical aspects --- Social aspects --- Organisatie van de gezondheidszorg: modellen van therapeutisch handelen --- Sociale epidemiologie en etiologie: sociale aspecten van ziekte en gezondheid --- Organisatie van de gezondheidszorg: algemeen, beleid --- test génétique (autotest génétique) --- dépistage génétique --- Manipulations génétiques --- Ethique médicale --- Eugénique --- Génétique --- (zie ook: genetisch advies) --- Diagnosis --- ethics --- diagnosis --- genetics --- Genetics --- Medicine and ethics --- Medicine and society --- Moral and ethical aspects. --- Social aspects. --- Genetics. --- Medicine and ethics. --- Medicine and society. --- 17.023.33 Biologische doeleinden. Bio-ethiek; bioethiek. Übermensch. Medische deontologie --- 241.63*5 Theologische ethiek: bio-ethiek (bioethiek); genetische experimenten; transplantatie; eugenetica --- Neonatal Screening --- #GBIB:CBMER --- Newborn Screening --- Newborn Screenings --- Screening, Newborn --- Screenings, Newborn --- dépistage génétique --- test génétique (autotest génétique) --- Biologische doeleinden. Bio-ethiek; bioethiek. Übermensch. Medische deontologie --- Eugénique --- Génétique --- Manipulations génétiques --- Ethique médicale --- Moraaltheologie (algemeen) --- Genetic screening - Moral and ethical aspects --- Genetic screening - Social aspects
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